Nixon's Story #31KM Donate Fundraise Words cannot describe the amount of love that we have for our amazing little man. Always a cheeky smile on his face. Tameka, Nixon’s mum When Nixon was only two years old, he began suffering from high temperatures, was extremely lethargic and had no appetite. ‘It’s viral’ was the diagnosis twice given to his worried parents Tameka and Dan when they took him to hospital. It wasn’t until Nixon started experiencing severe pain in his abdomen in July 2017 that blood tests were finally conducted and came back abnormal. At 2am on 27 July 2017, Nixon’s parents received the news that their little boy was extremely anaemic and had an enlarged liver. The couple’s worst fears were confirmed when a primary tumour was discovered in his abdomen, along with nodes in his chest. Nixon was transferred to Lady Cilento Children's Hospital where he was put under for a CT scan and then again for a central line that was inserted into his chest. A biopsy of the tumour was taken along with marrow aspirations. The cancer was throughout his abdomen (from his pelvis to his diaphragm), there were spots on his chest, right arm bone and both thigh bones. Tameka, Nixon’s mum Chemotherapy started the very next day. The cancer was pushing up onto Nixon’s diaphragm making it hard for him to breathe, so he also ended up on oxygen. One week later he was transferred to the Paediatric Intensive Care Unit. Since the diagnosis, little Nixon has had to endure: 8 months of horrible chemotherapy and the side effects 33 blood product transfusions 3 PICU admissions 12-hour major abdominal surgery where 85% of the cancer was removed 21 general anesthetics 62 GCSF Needles in his leg 2 stem cell transplants with high dose chemotherapy 12 sessions of radiation 231 days in hospital 4 months of extensive immunotherapy The chemotherapy also caused hearing loss (Nixon now wears hearing aids). Nixon finished his treatment plan in March 2019 and his scans were clear. Sadly in September 2019, Nixon relapsed. Today he is treatment for relapsed neuroblastoma. Nixon's journey continues through the family Facebook page Nixon's Hope for a Cure. Nixon's family have generously shared their neuroblastoma journey through our families pages and during Run2Cure Neuroblastoma 2019 through Nixon's Superhero page. Manage Cookie Preferences