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  • Lukas' Story

    Lukas' Story

    Lukas was growing up as a happy and super cheeky three-year-old. But in July 2019, he suddenly became very unwell. Read more

  1. About Neuroblastoma
  2. Family stories
  3. Family stories

Family stories

Read the stories of some of the brave children and their families affected by neuroblastoma.

Sienna's Story

Sienna's Story

Sienna Hoffman is the inspiration behind Neuroblastoma Australia. Sienna was born in London on 27th July 2007 and was a perfectly happy and healthy baby girl. Tragically, she was diagnosed with an aggressive form of neuroblastoma at just 7 months old and became a little angel on the 3rd February 2010. Sienna was just two and a half years old. Read more

Posted to: Family stories

Read the stories of some of the brave children and their families affected by neuroblastoma.

Published: 28th July, 2019

Updated: 2nd February, 2021

Related topics:
  • family stories
Nixon's Story

Nixon's Story

Meet the sunny three year old who has endured more medical procedures than most people deal with in a lifetime. Read more

Posted to: Family stories

Read the stories of some of the brave children and their families affected by neuroblastoma.

Published: 20th August, 2019

Updated: 2nd February, 2021

Author: Karina May

Related topics:
  • family stories
Mia's Story

Mia's Story

In February 2012, when Mia was only one, her mum Karina took her to the doctor. Within six hours, Mia had undergone blood tests and an ultrasound, which identified a tumour on her right kidney. Read more

Posted to: Family stories

Read the stories of some of the brave children and their families affected by neuroblastoma.

Published: 26th August, 2019

Updated: 2nd February, 2021

Author: Karina May

Related topics:
  • family stories
Penny's Story

Penny's Story

Penny had a persistent cough which was put down to ‘reflux’ until late October in 2014, just before Penny’s first birthday, when the family headed to the local hospital fearing she may have swallowed a toy however scans indicated Penny had a collapsed lung. Read more

Posted to: Family stories

Read the stories of some of the brave children and their families affected by neuroblastoma.

Published: 26th August, 2019

Updated: 2nd February, 2021

Author: Karina May

Related topics:
  • family stories
Kitty's Story

Kitty's Story

Kitty’s family’s world turned upside down on Tuesday 21 November 2017. The absolute last thing you expect to hear when you bring your child in for a sore leg is that they have cancer. Read more

Posted to: Family stories

Read the stories of some of the brave children and their families affected by neuroblastoma.

Published: 26th August, 2019

Updated: 2nd February, 2021

Author: Karina May

Related topics:
  • family stories
Adrian's Story

Adrian's Story

After countless visits to the pediatrician, on July 4 2012, Adrian’s parents, Nick and Bernadette, rushed Adrian to Sydney’s Children’s Hospital in Randwick. The next day they received the devastating news that Adrian had Stage 4 Neuroblastoma Intermediate risk. Read more

Posted to: Family stories

Read the stories of some of the brave children and their families affected by neuroblastoma.

Published: 26th August, 2019

Updated: 2nd February, 2021

Author: Karina May

Related topics:
  • family stories
Saskia's Story

Saskia's Story

Just before Christmas in 2017, Stephanie and Duane took their then 22 month old daughter Saskia to hospital because of a high fever. Read more

Posted to: Family stories

Read the stories of some of the brave children and their families affected by neuroblastoma.

Published: 26th August, 2019

Updated: 2nd February, 2021

Author: Karina May

Related topics:
  • family stories
Ciara's Story

Ciara's Story

Ciara’s is a story of triumph over the children’s cancer neuroblastoma and has been the driving force behind over $350,000 in fundraising which has been delivered to Children's Cancer Institute for research into the disease. Read more

Posted to: Family stories

Read the stories of some of the brave children and their families affected by neuroblastoma.

Published: 27th August, 2019

Updated: 2nd February, 2021

Author: Karina May

Related topics:
  • family stories
Zach's Story

Zach's Story

Paolo and Diana Carniel had never heard of neuroblastoma before August 2018 when their son Zach, just five years old at the time, was first diagnosed. Read more

Posted to: Family stories

Read the stories of some of the brave children and their families affected by neuroblastoma.

Published: 20th September, 2019

Updated: 2nd February, 2021

Author: Lynette Haines

Related topics:
  • family stories
Benji's Story

Benji's Story

Meet our first Run2Cure Neuroblastoma Superhero for 2020 - Benji! He and his family will be taking part in Run2cure 2020 on Sunday 31 May to raise awareness of, and desperately needed funds for a cure for the children's cancer neuroblastoma. Read more

Posted to: Family stories

Read the stories of some of the brave children and their families affected by neuroblastoma.

Published: 29th October, 2019

Updated: 2nd February, 2021

Author: Lynette Haines

Related topics:
  • family stories
Isabella's Story

Isabella's Story

In the month before she was diagnosed Isabella started to lose weight, and various other symptoms started to make her very unwell. Read more

Posted to: Family stories

Read the stories of some of the brave children and their families affected by neuroblastoma.

Published: 26th November, 2019

Updated: 2nd February, 2021

Author: Lynette Haines

Related topics:
  • family stories
Georgie's Story

Georgie's Story

When parents Katie and George noticed their 15 month old son Georgie's belly button had changed they never imagined that within the month he'd be diagnosed with Stage 4 Neuroblastoma; a childhood cancer the family had never even heard of. Read more

Posted to: Family stories

Read the stories of some of the brave children and their families affected by neuroblastoma.

Published: 9th December, 2019

Updated: 2nd February, 2021

Author: Lynette Haines

Related topics:
  • family stories
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Latest

  • Musical toys shown to enhance development of toddlers

    Musical toys shown to enhance development of toddlers

    To help keep your kids entertained whilst advancing their development at the same time, Neuroblastoma Australia have recently added a new musical toy collection to our online charity shop.

  • Together for Mahli

    Together for Mahli

    My daughter, Mahli, is going through treatment for Stage 4 High Risk Neuroblastoma

  • Lukas' Story

    Lukas' Story

    Lukas was growing up as a happy and super cheeky three-year-old. But in July 2019, he suddenly became very unwell.

  • #2LITTLE Campaign Launched for Neuroblastoma Awareness Week

    #2LITTLE Campaign Launched for Neuroblastoma Awareness Week

    Neuroblastoma Awareness Day on 2nd February marks the start of a week-long #2little campaign to highlight the lack of funding for childhood cancers and rare toddler cancer neuroblastoma.

Most read

  • Run2Cure Domain 2021

    Run2Cure Domain 2021

    Run2Cure Domain 2021 will take place in September 2021. Enjoy a wonderful day of fun runs and family entertainment and support research into a cure for the children's cancer neuroblastoma.

  • Accessibility

    Neuroblastoma Australia is committed to providing a website that is accessible to the widest possible audience, regardless of technology or ability. Our website endeavours to conform to level Double-A of the World Wide Web Consortium W3C Web Content Accessibility Guidelines 2.0.

  • Kahlilla's Story #14km

    Kahlilla's Story #14km

    Little Lilla's light continues to shine. Always and forever.

  • Detection, diagnosis & staging

    Detection, diagnosis & staging

    Most symptoms of neuroblastoma are caused by the growth of the cancer into nearby tissues or organs, or its spread to distant parts of the body such as bones or bone marrow.

  • What is neuroblastoma?

  • Childhood Cancer Awareness Month

    Childhood Cancer Awareness Month

    September is Childhood Cancer Awareness Month. Share our hope for a cure for ALL types of neuroblastoma during September. More children under five die from neuroblastoma than from any other childhood cancer.

  • Summer's Story #34

    Summer's Story #34

    Summer battled for 15 months and gained her wings 22 December 2018. Very loved and missed by her family especially her three brothers

  • Two research grants awarded

    Two research grants awarded

    Today we announced funding grants to two ground breaking research projects which we hope will take us a step close to finding a cure for the rare and deadly children’s cancer neuroblastoma.

  • How is it diagnosed?

  • Adam's Story #39

    Adam's Story #39

    Adam, a little boy starting out in life who was diagnosed with a cruel and vicious disease, that no treatment could eradicate. We must do better for our children.

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