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  1. About Neuroblastoma
  2. Family stories

Family stories

Read the stories of some of the brave children and their families affected by neuroblastoma.

Lucy Jones with her baby daughter Sienna

Sienna's Story

Sienna Hoffman is the inspiration behind Neuroblastoma Australia. Sienna was born in London on 27th July 2007 and was a perfectly happy and healthy baby girl. Tragically, she was diagnosed with an aggressive form of neuroblastoma at just 7 months old and became a little angel on the 3rd February 2010. Sienna was just two and a half years old. Read more

Posted to: Family stories

Read the stories of some of the brave children and their families affected by neuroblastoma.

Published: 28th July, 2019

Updated: 23rd September, 2019

Related topics:
  • family stories

Nixon's Story

Meet the sunny three year old who has endured more medical procedures than most people deal with in a lifetime. Read more

Posted to: Family stories

Read the stories of some of the brave children and their families affected by neuroblastoma.

Published: 20th August, 2019

Updated: 15th November, 2019

Author: Karina May

Related topics:
  • family stories

Mia's Story

In February 2012, when Mia was only one, her mum Karina took her to the doctor. Within six hours, Mia had undergone blood tests and an ultrasound, which identified a tumour on her right kidney. Read more

Posted to: Family stories

Read the stories of some of the brave children and their families affected by neuroblastoma.

Published: 26th August, 2019

Updated: 23rd September, 2019

Author: Karina May

Related topics:
  • family stories

Penny's Story

Penny had a persistent cough which was put down to ‘reflux’ until late October in 2014, just before Penny’s first birthday, when the family headed to the local hospital fearing she may have swallowed a toy however scans indicated Penny had a collapsed lung. Read more

Posted to: Family stories

Read the stories of some of the brave children and their families affected by neuroblastoma.

Published: 26th August, 2019

Updated: 1st October, 2019

Author: Karina May

Related topics:
  • family stories
Kitty with a big pink balloon in the shape of a 5

Kitty's Story

Kitty’s family’s world turned upside down on Tuesday 21 November 2017. The absolute last thing you expect to hear when you bring your child in for a sore leg is that they have cancer. Read more

Posted to: Family stories

Read the stories of some of the brave children and their families affected by neuroblastoma.

Published: 26th August, 2019

Updated: 23rd September, 2019

Author: Karina May

Related topics:
  • family stories
Adrian neuroblastoma hero at Run2Cure

Adrian's Story

After countless visits to the pediatrician, on July 4 2012, Adrian’s parents, Nick and Bernadette, rushed Adrian to Sydney’s Children’s Hospital in Randwick. The next day they received the devastating news that Adrian had Stage 4 Neuroblastoma Intermediate risk. Read more

Posted to: Family stories

Read the stories of some of the brave children and their families affected by neuroblastoma.

Published: 26th August, 2019

Updated: 24th September, 2019

Author: Karina May

Related topics:
  • family stories

Saskia's Story

Just before Christmas in 2017, Stephanie and Duane took their then 22 month old daughter Saskia to hospital because of a high fever. Read more

Posted to: Family stories

Read the stories of some of the brave children and their families affected by neuroblastoma.

Published: 26th August, 2019

Updated: 23rd September, 2019

Author: Karina May

Related topics:
  • family stories

Ciara's Story

Ciara’s is a story of triumph over the children’s cancer neuroblastoma and has been the driving force behind over $350,000 in fundraising which has been delivered to Children's Cancer Institute for research into the disease. Read more

Posted to: Family stories

Read the stories of some of the brave children and their families affected by neuroblastoma.

Published: 27th August, 2019

Updated: 23rd September, 2019

Author: Karina May

Related topics:
  • family stories
Young Zach in hospital with fluffy grey toy cat

Zach's Story

Paolo and Diana Carniel had never heard of neuroblastoma before August 2018 when their son Zach, just five years old at the time, was first diagnosed. Read more

Posted to: Family stories

Read the stories of some of the brave children and their families affected by neuroblastoma.

Published: 20th September, 2019

Updated: 10th February, 2020

Author: Lynette Haines

Related topics:
  • family stories

Benji's Story

Meet our first Run2Cure Neuroblastoma Superhero for 2020 - Benji! He and his family will be taking part in Run2cure 2020 on Sunday 31 May to raise awareness of, and desperately needed funds for a cure for the children's cancer neuroblastoma. Read more

Posted to: Family stories

Read the stories of some of the brave children and their families affected by neuroblastoma.

Published: 29th October, 2019

Updated: 21st December, 2019

Author: Lynette Haines

Related topics:
  • family stories
Bella in front of Christmas Tree

Isabella's Story

In the month before she was diagnosed Isabella started to lose weight, and various other symptoms started to make her very unwell. Read more

Posted to: Family stories

Read the stories of some of the brave children and their families affected by neuroblastoma.

Published: 26th November, 2019

Updated: 11th December, 2019

Author: Lynette Haines

Related topics:
  • family stories
Georgie in hospital

Georgie's Story

When parents Katie and George noticed their 15 month old son Georgie's belly button had changed they never imagined that within the month he'd be diagnosed with Stage 4 Neuroblastoma; a childhood cancer the family had never even heard of. Read more

Posted to: Family stories

Read the stories of some of the brave children and their families affected by neuroblastoma.

Published: 9th December, 2019

Updated: 10th January, 2020

Author: Lynette Haines

Related topics:
  • family stories
Load more Back to top

Showing 10 of 17

Latest

  • Ava's Story #3KM

    A true hero, Ava has pushed through 18 months of treatment with strength beyond her years. She is now participating in a trial with the hope it will keep her cancer free.

  • Nixon sitting in chair

    Nixon's Story #31KM

    Diagnosed with Stage 4 High Risk Neuroblastoma MYCN Amplified at just 16 months old, this amazing little man has endured an intensive treatment regime before getting the all clear in March 2019. Sadly he relapsed just a few month later. He's now taking on treatment for relapsed neuroblastoma.

  • Sophie's Story #9KM

    Little Sophie's family had never heard of neuroblastoma when she was diagnosed in 2019. This little hero is currently undergoing immunotherapy having already endured six rounds of chemo, surgery, stem cells transplants and radiotherapy.

  • Declan banner #8KM

    Declan's Story #8KM

    Declan's battle with neuroblastoma began just before his fourth birthday and tragically ended just before his eighth. Loved and missed by his heartbroken family.

Most read

  • Run2Cure 2020

    Book your Run2Cure tickets by Friday 28 February and save 25% in our Super Earlybird Sale!

  • Accessibility

    Neuroblastoma Australia is committed to providing a website that is accessible to the widest possible audience, regardless of technology or ability. Our website endeavours to conform to level Double-A of the World Wide Web Consortium W3C Web Content Accessibility Guidelines 2.0.

  • Kahlilla smiling with a pink hat

    Kahlilla's Story #14km

    Little Lilla's light continues to shine. Always and forever.

  • Detection, diagnosis & staging

    Most symptoms of neuroblastoma are caused by the growth of the cancer into nearby tissues or organs, or its spread to distant parts of the body such as bones or bone marrow.

  • What is neuroblastoma?

    Neuroblastomas are cancers that start in early nerve cells (called neuroblasts) of the sympathetic nervous system. This means that tumours can be found anywhere along this system; most commonly (about 50%) start in the adrenal glands (above the kidney), or near the spine, chest, neck or pelvis.

  • Indianna and her mum and dad

    Indianna's Story

    Indianna was diagnosed with high-risk neuroblastoma at just 12 months of age. Even while enduring high strength chemotherapy she found the strength to play peak a- boo with the nurses and charm the doctors with her smile and incredible dimples.

  • Maddy dressed up with her mum Monique

    Childhood Cancer Awareness Month

    This September, wear gold and join our #hope campaign to raise awareness of all forms of children's cancer and the toll it takes on the youngest members of our community and their families.

  • Two research grants awarded to the Children's Cancer Institute

    Today we announced funding grants to two ground breaking research projects which we hope will take us a step close to finding a cure for the rare and deadly children’s cancer neuroblastoma.

  • Young Zach in hospital with fluffy grey toy cat

    Zach's Story

    Paolo and Diana Carniel had never heard of neuroblastoma before August 2018 when their son Zach, just five years old at the time, was first diagnosed.

  • Declan banner #8KM

    Declan's Story #8KM

    Declan's battle with neuroblastoma began just before his fourth birthday and tragically ended just before his eighth. Loved and missed by his heartbroken family.

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2little Golf2Cure research Vital research Zach's neuroblastoma story

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