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  • Emeline's Story

    Emeline's Story

    After months of misdiagnoses, including a middle-of-the-night emergency trip to the hospital, Emeline’s mum took her to a paediatric gastroenterologist believing her tummy issue was severe constipation. It turned out to be neuroblastoma. Read more

  • Lukas' Story

    Lukas' Story

    Lukas was growing up as a happy and super cheeky three-year-old. But in July 2019, he suddenly became very unwell. Read more

  • Emeline's Story
  • Lukas' Story
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  1. Home
  2. family stories

family stories

Ethan Paterson's Story

Ethan Paterson's Story

Ethan's diagnosis was Stage 4 Neuroblastoma with a tumour on his adrenal gland, a secondary tumour on his lower spine and a disease in pretty much every bone of his body. Read more

Published: 20th March, 2022

Updated: 22nd April, 2022

Evie's Story

Evie's Story

Six year old Evie lived and loved so fiercely. She will be forever missed. Read more

Published: 11th February, 2020

Updated: 11th April, 2022

Author: Lynette Haines

Nixon's Story

Nixon's Story

Meet the sunny three year old who has endured more medical procedures than most people deal with in a lifetime. Read more

Published: 20th August, 2019

Updated: 14th November, 2021

Author: Karina May

Kalynda's Story

Kalynda's Story

At seven months, Kalynda lost complete movement in her body. Further diagnosis revealed a mass in her chest cavity pushing out her ribs and compressing her spine. It was an intermediate grade neuroblastoma. Read more

Published: 20th July, 2021

Updated: 13th November, 2021

Emeline's Story

Emeline's Story

After months of misdiagnoses, including a middle-of-the-night emergency trip to the hospital, Emeline’s mum took her to a paediatric gastroenterologist believing her tummy issue was severe constipation. It turned out to be neuroblastoma. Read more

Published: 22nd June, 2021

Updated: 13th November, 2021

Theodore's Story

Theodore's Story

Our June Run2Cure 2021 Superhero, Theodore Hilton is a bubbly 2 year old and the youngest of 3 beautiful sons. On Saturday, September 4th 2021, he and his family will be supporting the Run2Cure 2021 to raise awareness and funds for Neuroblastoma childhood cancer. Read more

Published: 1st June, 2021

Updated: 10th September, 2021

Author: Jody Mullen

Noah's Story

Noah's Story

Our first Run2Cure 2021 Superhero, Noah Lord is a cheerful, spirited, strong-willed 3 year old, who has not let Neuroblastoma slow him down. On Saturday, September 4th 2021, he and his family will be supporting the Run2Cure 2021 to raise awareness and funds for Neuroblastoma childhood cancer. Read more

Published: 9th March, 2021

Updated: 13th August, 2021

Roy's story

Roy's story

Emma and Sam welcomed beautiful baby Roy into their lives at the very height of the 2020 COVID-19 pandemic. The last thing this courageous family expected was a neuroblastoma cancer diagnosis. Read more

Published: 28th May, 2021

Updated: 13th August, 2021

Eleanor's Story

Eleanor's Story

In January 2018 after being dismissed many times from Emergency with what was thought to be a 'virus', 18-month-old Eleanor was diagnosed with Stage Four High Risk Neuroblastoma and began the fight of her life. Read more

Published: 22nd June, 2021

Updated: 2nd July, 2021

Our purpose

Our purpose

Neuroblastoma is an aggressive childhood cancer and survival rates for the aggressive types are around 50%. Children diagnosed with neuroblastoma are on average just 2 years old. Ultimately, we want a cure so that all children get the chance to grow up and lead long and healthy lives. Read more

Published: 19th July, 2019

Updated: 12th April, 2021

Author:

Danye's Story

Danye's Story

Little Danye has four brothers, one sister, a brave mum and the heart of a lion. Read more

Published: 10th February, 2020

Updated: 10th March, 2021

Author: Lynette Haines

Saskia's Story

Saskia's Story

Just before Christmas in 2017, Stephanie and Duane took their then 22 month old daughter Saskia to hospital because of a high fever. Read more

Published: 26th August, 2019

Updated: 2nd February, 2021

Author: Karina May

Kitty's Story

Kitty's Story

Kitty’s family’s world turned upside down on Tuesday 21 November 2017. The absolute last thing you expect to hear when you bring your child in for a sore leg is that they have cancer. Read more

Published: 26th August, 2019

Updated: 2nd February, 2021

Author: Karina May

Penny's Story

Penny's Story

Penny had a persistent cough which was put down to ‘reflux’ until late October in 2014, just before Penny’s first birthday, when the family headed to the local hospital fearing she may have swallowed a toy however scans indicated Penny had a collapsed lung. Read more

Published: 26th August, 2019

Updated: 2nd February, 2021

Author: Karina May

Oliver's Story

Oliver's Story

Just before Oliver turned ten, the young sportsman and his loving parents Sarah and Duncan, discovered he was suffering from the children's cancer neuroblastoma. Read more

Published: 8th July, 2020

Updated: 2nd February, 2021

Author: Lynette Haines

Indianna's Story

Indianna's Story

Indianna was diagnosed with high-risk neuroblastoma at just 12 months of age. Even while enduring high strength chemotherapy she found the strength to play peak a- boo with the nurses and charm the doctors with her smile and incredible dimples. Read more

Published: 12th December, 2019

Updated: 2nd February, 2021

Author: Lynette Haines

Amber's Story

Amber's Story

In July 2015, four and a half year old Amber had woken up from her sleep complaining of a sore stomach – which was very out of ordinary for her. Read more

Published: 11th December, 2019

Updated: 2nd February, 2021

Author: Lynette Haines

Madison's Story

Madison's Story

Monique noticed Maddie was starting to withdraw more and more from her usual activities and becoming very clingy, which doctors initially put down to a virus and the usual boundary-pushing of her age group. About a week and more doctors’ visits later Maddie ended up in the ER. Read more

Published: 9th December, 2019

Updated: 2nd February, 2021

Author: Lynette Haines

Georgie's Story

Georgie's Story

When parents Katie and George noticed their 15 month old son Georgie's belly button had changed they never imagined that within the month he'd be diagnosed with Stage 4 Neuroblastoma; a childhood cancer the family had never even heard of. Read more

Published: 9th December, 2019

Updated: 2nd February, 2021

Author: Lynette Haines

Isabella's Story

Isabella's Story

In the month before she was diagnosed Isabella started to lose weight, and various other symptoms started to make her very unwell. Read more

Published: 26th November, 2019

Updated: 2nd February, 2021

Author: Lynette Haines

Benji's Story

Benji's Story

Meet our first Run2Cure Neuroblastoma Superhero for 2020 - Benji! He and his family will be taking part in Run2cure 2020 on Sunday 31 May to raise awareness of, and desperately needed funds for a cure for the children's cancer neuroblastoma. Read more

Published: 29th October, 2019

Updated: 2nd February, 2021

Author: Lynette Haines

Zach's Story

Zach's Story

Paolo and Diana Carniel had never heard of neuroblastoma before August 2018 when their son Zach, just five years old at the time, was first diagnosed. Read more

Published: 20th September, 2019

Updated: 2nd February, 2021

Author: Lynette Haines

Ciara's Story

Ciara's Story

Ciara’s is a story of triumph over the children’s cancer neuroblastoma and has been the driving force behind over $350,000 in fundraising which has been delivered to Children's Cancer Institute for research into the disease. Read more

Published: 27th August, 2019

Updated: 2nd February, 2021

Author: Karina May

Adrian's Story

Adrian's Story

After countless visits to the pediatrician, on July 4 2012, Adrian’s parents, Nick and Bernadette, rushed Adrian to Sydney’s Children’s Hospital in Randwick. The next day they received the devastating news that Adrian had Stage 4 Neuroblastoma Intermediate risk. Read more

Published: 26th August, 2019

Updated: 2nd February, 2021

Author: Karina May

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Showing 10 of 28

Latest

  • Research Grants Round Open

    Research Grants Round Open

    Neuroblastoma Australia Grant Round
    Opening - 23rd May 2022. We will be funding two research grants and awarding $175 000.

  • Jake's Kangaroo Island Marathon for 2 Many 2 Young

    Jake's Kangaroo Island Marathon for 2 Many 2 Young

    I was first exposed to Neuroblastoma when a member of my local football club, Jai, passed away at the age of nine. I saw the impact this had on those close to him, including his family and close friends as well as the broader community. This experience enlightened me to the widespread impacts of this horrible disease and the dire need for a cure. It is for this reason that I have run in various events alongside my mum in the hope of raising awareness and funds for a much needed cure. I am determ

  • Support Neuroblastoma Australia in the 2022 SMH Half Marathon

    Support Neuroblastoma Australia in the 2022 SMH Half Marathon

    What's a better feeling than crossing the SMH Half Marathon finish line? Doing it for a cause! Run Australia’s largest and most iconic half marathon and support our fight against neuroblastoma childhood cancer.

  • Mother's Day Gifts to Make a Difference

    Mother's Day Gifts to Make a Difference

    Find the perfect gift for mum, this Mother's day. View our range of gift ideas and buy a unique gift that gives back. With all profits going towards supporting neuroblastoma cancer research.

Most read

  • Emeline's Story

    Emeline's Story

    After months of misdiagnoses, including a middle-of-the-night emergency trip to the hospital, Emeline’s mum took her to a paediatric gastroenterologist believing her tummy issue was severe constipation. It turned out to be neuroblastoma.

  • Run2Cure Local 2022

    Run2Cure Local 2022

    If you can't make Run2Cure in the Domain on 3 April, why not join Run2Cure Local and do the distance in a location near you! Choose your challenge and help us raise awareness and much needed funds for neuroblastoma.

  • What is neuroblastoma?

  • Jazmyn's 2 many 2 young Walk

    Jazmyn's 2 many 2 young Walk

    Support this special 2.2 km walk - inspired by Jazmyn Mitchell. Dress Up and wear a tutu 2 help raise awareness on 20.02.2022 and support all the children affected by neuroblastoma. This is Jazmyn's walk and legacy - a special light in this world.

  • How common is neuroblastoma?

  • How dangerous is neuroblastoma?

  • How is it diagnosed?

  • Why does this cancer form?

  • Donate today

    Donate today

    Help us beat the number one toddler cancer. Please donate today to support world class Australian research into developing better, safer treatments with the ultimate goal of finding a definitive cure for all children diagnosed with neuroblastoma.

  • Detection, diagnosis & staging

    Detection, diagnosis & staging

    Know about symptoms of neuroblastoma, detection, diagnosis and different stages of neuroblastoma childhood cancer.

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#GivingTuesdayNow #run2curelocal 2little 44kmfor44kids A gift for a child with cancer Donate today Golf2Cure research Zach's neuroblastoma story

Latest tweet

  • Gift an activity pack to a child with #neuroblastoma. High-quality packs provide entertainment and distraction duri… https://t.co/FiNabKV9IC

    10thMay, 2022 @NeuroblastomaAu
  • Our next family support group will take place at the end of May/start of June via Zoom. The group is a safe space t… https://t.co/Afp4ibCJHp

    4thMay, 2022 @NeuroblastomaAu
  • Help Natalie and Jake reach their fundraising goal by donating via their page ➡️https://t.co/rmp5ccM01P

    28thApril, 2022 @NeuroblastomaAu

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