Neuroblastoma Australia is a registered charity – currently run by families and friends affected by neuroblastoma on a volunteer basis. The organisation has three main objectives

1)  To raise the profile of this childhood cancer – it is the leading cause of death of children under the age of 5 but few have heard of it

2) To increase fundraising efforts targeted specifically at research into Neuroblastoma. Survival rates can be changed with more research and we believe raising awareness will help increase funds for specific neuroblastoma research – we believe it is possible to change the current average survival rate which is 50%. Other childhood cancers such as leukaemia (ALL – 90% survival) have seen a dramatic improvement in survival rates thanks to research and there is no reason why the same progress cannot be made with more research going into neuroblastoma.

To date over 1.1 Million dollars has been raised for neuroblastoma research.

3) To provide information and support for those affected by this childhood cancer. Neuroblastoma is a rare disease and it means a family experiencing neuroblastoma often feel isolated and have no knowledge of this cancer.

Neuroblastoma Australia is inspired by little Sienna Hoffmann who tragically lost her battle against the disease in 2010. Following her determination, this organisation has been created by two families – one being that of Sienna Hoffmann and one being that of Ciara Flanagan who is a neuroblastoma survivor.

Our mission statement is CURE

 

On 1st September, the sails of the Sydney Opera House will be lit in gold to mark the start of Childhood Cancer Awareness Month. There will be a candlelit vigil you can attend to honour all children diagnosed with cancer. For details see below. To show your support, you can also buy yellow wristbands: www.neuroblastoma.org.au/product-category/wristbands/ ...

September is International Childhood Cancer Awareness month. Join us at the Sydney Opera House on 1 September for a candlelight vigil and watch the Opera House sails turn gold & help raise awareness for childhood cancer research while honouring all children diagnosed with cancer. We are inviting all families & friends touched by childhood cancer to attend, or submit a photo for our digital tribute wall which will celebrate all kids affected by childhood cancer – past and present, and honour all the children who we couldn't find a cure for soon enough. To secure your place or provide a photo for the tribute wall, please email marketing@ccia.org.au Stay tuned for further posts with more information #gogoldforkids The Kids' Cancer Project Sydney Children's Hospital Foundation The Children's Hospital at Westmead

Neuroblastoma Australia
Ste 3, 165 Sailors Bay Rd
Northbridge NSW 2063
0406 991 606
info@nb.org.au
Neuroblastoma Australia Incorporated is a registered charity with GDR Status . ABN 74 173 375 414.