Lucy Jones

Co-Founder and CEO Neuroblastoma Australia

CEO, Lucy Jones is focused on driving change neuroblastoma survival rates through more research, having tragically lost her daughter Sienna to this cancer in 2010.

When Sienna was first diagnosed, Lucy started fundraising with a small group of friends. The group 'Sienna Hoffmann and friends' raised over $725 000 for the Children’s Cancer Institute. They did this through a number of Sienna Frangipani Gala Dinners as well as other events and founded the Run2Cure Neuroblastoma with friends and volunteers.

Since then, over $3.7 million dollars have been raised to fund innovative research into neuroblastoma childhood cancer, with the goal of finding a cure for this devastating disease.

Lucy is a board director on the Australian and New Zealand Children's Oncology Group, and also is an appointed member of the General Assembly for the Accelerate Initiative in Europe. She is also an associate investigator on a number of neuroblastoma research projects. In 2024 Lucy was awarded the Premier Award for Advocacy by Cancer NSW.

Lucy has a Master in Business Administration and recently completed a degree in psychology. She worked in the corporate world as a national buyer prior to starting her mission to change outcomes for children with cancer.

(14) Lucy Jones | LinkedIn

Latest

Neuroblastoma Australia Responds to Federal Budget Announcement

Neuroblastoma Australia is extremely disappointed the Federal Budget did not include specific funding for CAR-T Cell treatment for solid tumours - it’s a devastating omission for Australian children diagnosed with neuroblastoma.
Oaten's | Raising funds for research into neuroblastoma

I'm fundraising for Neuroblastoma Australia, to raise funds for vital research into better, kinder and more effective treatments for the children's cancer neuroblastoma. Please show your support by donating via this page.
A Wish Come True for Logan

Little legend, Logan, was diagnosed with neuroblastoma as a baby. Recently, Collingwood's Nick Daicos made Logan's dream come true by running out onto the pitch with him for Daicos' 100th AFL appearance.
Our Story

Neuroblastoma takes the lives of more children under five than any other cancer. Help us fund new research to find a cure within our lifetime and save toddlers' lives.

Kelly Fung

Kelly is the Run2Cure Event Manager at Neuroblastoma Australia. Originally from Hong Kong, she brings over 8 years of experience in the events industry, she has worked across corporate, fashion, sports, and luxury brand events.
Brianna McDowell

As Event Coordinator at Neuroblastoma Australia, Brianna brings over six years of experience delivering high-quality personal and corporate events across a range of Sydney venues.
Victoria Birch

Victoria is a seasoned content creator and digital marketeer with over 20 years of experience in marketing, communication, and storytelling. Passionate about using digital platforms to drive change, she works at Neuroblastoma Australia creating impactful content that raises awareness and supports families affected by neuroblastoma.
Chelsea Ong

Chelsea has a background in marketing and worked in Singapore for over 10 years before moving to Sydney in 2021. Passionate about early education and child development, she has spent time volunteering with Story Factory Sydney - a non-profit creative writing centre for young people in under-resourced communities.
Michele Smith

After finishing her HSC , Michele did a three year Management Cadetship with Grace Bros/Myer in conjunction with completing an Advanced Management Certificate at Tafe. Michele has had numerous management roles with Myer and David Jones for thirteen years.
Jody Mullen

Jody’s professional background was in marketing and customer training and education, primarily in the software industry. Out of her lifelong passion for running, she also became an accredited running coach with Athletics Australia in 2015 and enjoys coaching runners of all abilities.
Contact us

Neuroblastoma Australia is a Sydney Children's Cancer Charity in North Sydney and is a registered charity with GDR Status. The best way to contact us is through [email protected]

What is neuroblastoma?
Donate today

One in two children with aggressive neuroblastoma will not survive. Neuroblastoma is the number one toddler cancer. We need your help to find effective treatments. Donate today to support world class Australian research into developing less toxic, more effective treatments, with the ultimate goal of finding a cure. Donate as an individual or business and receive a tax-deductible receipt for all donations over $2.
Detection, diagnosis & staging

Know about symptoms of neuroblastoma, detection, diagnosis and different stages of neuroblastoma childhood cancer.
How common is neuroblastoma?
How dangerous is neuroblastoma?
Our Story

Neuroblastoma takes the lives of more children under five than any other cancer. Help us fund new research to find a cure within our lifetime and save toddlers' lives.
How is it diagnosed?
Why does this cancer form?
Golf2Cure 2025

Our 2025 charity golf day, Golf2Cure, will take place on Thursday, June 26 at the prestigious Lakes Golf Club at Eastlakes, Sydney. The aim of the day is to have fun, increase awareness of neuroblastoma, and to raise funds for research into this devastating childhood cancer so we can find treatments that are more effective and less toxic.
Key Statistics

Know key statistics about the childhood cancer, neuroblastoma. Neuroblastoma is the most common solid tumour of childhood and its treatment. Most neuroblastomas, made up of cells found in nerve tissues of the body, start in the adrenal glands.