Related Support Services

It’s important to seek support from family, friends, health professionals or other services to help you, your child and your family cope with cancer.

Your child’s treatment team can assist you to access support services and we have listed a range of options below. For additional specific information about childhood cancer, contact any of the major children’s hospitals and networks in your state or territory.

Visit our Connecting with other families area for ideas on how to get involved with our neuroblastoma community.

Children's Cancer Foundation has developed a Family Support Alliance directory to connect families of children with cancer to services and information provided by credible not-for-profit organisations.

Information about neuroblastoma (Australian)

Australian Government Children’s Cancer Website
Neuroblastoma Downloadable Fact Sheet from the Australian Government
Children’s Cancer Institute
Living with Children’s Cancer
Cancer Advisor
Centre for Genetics Education
Kids guide to cancer App from Camp Quality
John Hunter Children’s Hospital Cancer Service
Key points to know about neuroblastoma PDQ Neuroblastoma Treatment

Information about neuroblastoma (international)

CureSearch (US) - Neuroblastoma in Children information area
National Cancer Institute (US) - Children with Cancer: A Guide for Parents
Children's Oncology Group Family Handbook
PDQ® Pediatric Treatment Editorial Board. PDQ Neuroblastoma Treatment. Bethesda, MD: National Cancer Institute (NCI) USA.
Patient information publications from the National Cancer Institute including Children with Cancer: A Guide for Parents
St Baldrick's Foundation - what is neuroblastoma article
What Is Neuroblastoma? American Cancer Society
Key Statistics About Neuroblastoma American Cancer Society
What’s New in Neuroblastoma Research? American Cancer Society
Neuroblastoma survival rates based on risk groups American Cancer Society
About and key statistics downloadable PDF - American Cancer Society
American Cancer Society’s Cancer Statistics Center - American Cancer Society
American Cancer Society
American Cancer Society - questions to ask your child’s cancer care team
Neuroblastoma Society (UK)
Neuroblastoma Parent Handbook - Neuroblastoma UK
Cure Search (USA)
The Advances in Neuroblastoma Research Association
The Neuroblastoma Consortium (Global)
The Children’s Neuroblastoma Cancer Foundation (USA)
Neurobla stoma a Handbook for Familie s - Association of Pediatric Oncology/Haemotolgy Nurses
Children’s Cancer and Leukemia Group (CCLG UK) - large range of downloadable and free publications
The Children’s Oncology Group (based in USA)
eBook Lucy has a Tumour - UK charity CLIC SARGENT
International Society for Pediatric Oncology
Grace Kelly Childhood Cancer Trust - (based in UK) - download booklets for children

Family Support Alliance

https://www.childrenscancersupport.com.au

Family related information from the Cancer Council

What is cancer? Cancer Australia
Key statistics Cancer Australia
Australian Childhood Cancer Statistics - Cancer Council (QLD)
Cancer Australia’s National Cancer Control Indicators website - how common is childhood cancer
The Cancer Council Australia. Call the Cancer Council Helpline from anywhere in Australia for the cost of a local call on 13 11 20.
A Summary of Childhood Cancer Statistics in Australia (from 1983 to 2014) produced by QLD Cancer Council
Cancer Council (NSW - talking to kids about cancer)
Cancer Council (QLD - cancer in the school community)
Cancer Council (TAS - children, adolescents and young adult services)
Cancer Council (SA - counselling and mindfulness)
Cancer Council (WA - services and programs)
Cancer Council (NT - online resources)
Cancer Council (ACT - information and support)
Cancer Council (VIC - during and after childhood cancer

Information from Australian Hospitals

Peter Mac Cancer Centre (VIC) Paediatric Oncology
The Royal Children’s Hospital Melbourne (Chronic illness and school)
The Royal Children’s Hospital Melbourne (What do I tell my friends?)
Paediatric Integrated Cancer Service (Coming off treatment parent handbook)
Kids Cancer Service John Hunter Hospital
Cancer Centre for Children, Children’s Hospital Westmead information includes:

Women’s and Children’s Hospital Adelaide:

Childhood cancer Information for you and your family resource area
Neuroblastoma Fact Sheet

Podcast - Dr Geoff - Dr Geoff from Westmead hospitals podcasts. He explains treatment well and particularly each drug.

Financial and emotional support

Make a Wish
Red Kite: Support and information for children and young people with cancer and their families.
Camp Quality: Services and programs are specifically designed to help children aged 0-13 cope with the daily ups and downs of dealing with cancer including family fun days, school education and support services:
Kids Guide to Cancer App: Free app that supports kids who have a parent, sibling, friend, or loved one with cancer.
Starlight Foundation: Wishgranting for seriously ill children and their families,
Livewire: Livewire is an online community specifically for teens (aged 12-20) living with a serious illness, disability or chronic health condition. 12 to 20 years
Hoxby: Global freelance agency offering remote and flexible paid work options

Palliative care and bereavement support

NSW Paediatric Palliative Care Programme
Australian Paediatric Palliative Care
Feel The Magic Foundation (childhood bereavement support)
Support with grief and bereavement (Redkite)
Video for bereaved parents (Redkite)
Connect group for bereaved parents (Redkite)
Sydney Children’s Hospital Bear Cottage - family support services:

Books

Redkite Bookclub - Books about cancer for children, parents and medical professionals.
Cancer Advisor - Reliable information for families of children with cancer, and young people under 25 with a diagnosis.
Book - Childhood Cancer: A Parent’s Guide to Solid Tumour Cancers
Book - My Cancer by Angus Olsen
Bereavement books for children - Grace Kelly Childhood Cancer Trust

If you have had a good experience with a support service and think that other families would benefit, please email us at [email protected].

Give a gift to a child with cancer

Brighten a child's day - for as little as $59, you can gift a child with neuroblastoma a fun Activity Pack to keep them entertained and engaged whilst isolated indoors at home or in hospital.

Latest

Give a gift of hope that lasts beyond Christmas

Let’s fund research today to make neuroblastoma a thing of the past. With a donation this Christmas, you can help us fund new research to find a cure within our lifetimes.
Shop for a Cause

This Christmas, shop for a cause. Our Neuroblastoma online Christmas catalogue has a fantastic range of Jellycat soft toys and so many more beautiful gifts for you to choose from. 100% of profits from every purchase goes towards our work. Click here to shop.
Recycle to Cure

Be a recycling hero, save the environment and make a positive difference to our cause. Gather your bottles and cans, and contact ReCollect. Your support not only means less waste for landfill but also a contribution to the number 1 cause of cancer deaths in children under 5 - neuroblastoma.
Lucy's Story

In January 2021, Lucy was just like every other seemingly healthy 5.5-year-old-girl, excitedly preparing to start school, when she was diagnosed with neuroblastoma.

Flexible work options for families affected by neuroblastoma
Coronavirus help guide

Visit our neuroblastoma family support area to find helpful information and resources including our Coronavirus help guide, free family activities, neuroblastoma statistics and advice for families who are newly diagnosed, on treatment, post treatment, hospital tips, support services and clinical trials.