Related Support Services

It’s important to seek support from family, friends, health professionals or other services to help you, your child and your family cope with cancer.

Your child’s treatment team can assist you to access support services and we have listed a range of options below. For additional specific information about childhood cancer, contact any of the major children’s hospitals and networks in your state or territory.

Visit our Connecting with other families area for ideas on how to get involved with our neuroblastoma community.

Information about neuroblastoma (Australian)

Australian Government Children’s Cancer Website
Neuroblastoma Downloadable Fact Sheet from the Australian Government
Children’s Cancer Institute
Living with Children’s Cancer
Cancer Advisor
Centre for Genetics Education
Kids guide to cancer App from Camp Quality
John Hunter Children’s Hospital Cancer Service

Information about neuroblastoma (international)

CureSearch (US) - Neuroblastoma in Children information area
National Cancer Institute (US) - Children with Cancer: A Guide for Parents
Children's Oncology Group Family Handbook
PDQ® Pediatric Treatment Editorial Board. PDQ Neuroblastoma Treatment. Bethesda, MD: National Cancer Institute (NCI) USA.
Patient information publications from the National Cancer Institute including Children with Cancer: A Guide for Parents
St Baldrick's Foundation - what is neuroblastoma article
American Cancer Society
American Cancer Society - questions to ask your child’s cancer care team
Neuroblastoma Society (UK)
Neuroblastoma Parent Handbook - Neuroblastoma UK
Cure Search (USA)
The Advances in Neuroblastoma Research Association
The Neuroblastoma Consortium (Global)
The Children’s Neuroblastoma Cancer Foundation (USA)
Neurobla stoma a Handbook for Familie s - Association of Pediatric Oncology/Haemotolgy Nurses
Children’s Cancer and Leukemia Group (CCLG UK) - large range of downloadable and free publications
The Children’s Oncology Group (based in USA)
eBook Lucy has a Tumour - UK charity CLICK Sargent
International Society for Pediatric Oncology
Grace Kelly Childhood Cancer Trust - (based in UK) - download booklets for children

Family related information from the Cancer Council

The Cancer Council Australia. Call the Cancer Council Helpline from anywhere in Australia for the cost of a local call on 13 11 20.
A Summary of Childhood Cancer Statistics in Australia (from 1983 to 2014) produced by QLD Cancer Council
Cancer Council (NSW - talking to kids about cancer)
Cancer Council (QLD - cancer in the school community)
Cancer Council (TAS - children, adolescents and young adult services)
Cancer Council (SA - counselling and mindfulness)
Cancer Council (WA - services and programs)
Cancer Council (NT - online resources)
Cancer Council (ACT - information and support)
Cancer Council (VIC - during and after childhood cancer

Information from Australian Hospitals

Peter Mac Cancer Centre (VIC) Paediatric Oncology
The Royal Children’s Hospital Melbourne (Chronic illness and school)
The Royal Children’s Hospital Melbourne (What do I tell my friends?)
Paediatric Integrated Cancer Service (Coming off treatment parent handbook)
Kids Cancer Service John Hunter Hospital
Cancer Centre for Children, Children’s Hospital Westmead information includes:

Women’s and Children’s Hospital Adelaide:

Childhood cancer Information for you and your family resource area
Neuroblastoma Fact Sheet

Podcast - Dr Geoff - Dr Geoff from Westmead hospitals podcasts. He explains treatment well and particularly each drug.

Financial and emotional support

Palliative care and bereavement support

NSW Paediatric Palliative Care Programme
Australian Paediatric Palliative Care
Feel The Magic Foundation (childhood bereavement support)
Sydney Children’s Hospital Bear Cottage - family support services:

Books

Redkite Bookclub - Books about cancer for children, parents and medical professionals.
Cancer Advisor - Reliable information for families of children with cancer, and young people under 25 with a diagnosis.
Book - Childhood Cancer: A Parent’s Guide to Solid Tumour Cancers
Book - My Cancer by Angus Olsen https://wanderingbookseller.com.au/p/cancer-my-cancer
Bereavement books for children - Grace Kelly Childhood Cancer Trust

If you have had a good experience with a support service and think that other families would benefit, please email us at [email protected].

Support a young scientist with a breakthrough research project

Meet Dr Zsuzsanna Nagy from the Children's Cancer Institute. This young scientist has proposed an innovative research study which, if successful, would mean the introduction of a new treatment option designed to improve the long-term survival of children suffering from high risk neuroblastoma. You can help make this a reality. Will you?

Latest

Give a gift

The hard working frontline staff at Sydney's Children Hospital Randwick and Westmead kindly sent us some wonderful feedback regarding the help that these kits have provided to children and families.
Golf2Cure 2021

We are delighted to announce that our Golf2Cure Neuroblastoma 2020 event will be held on the NEW date of Friday 12th Feb 2021 at St Michael’s, Little Bay.
Lexy’s Lockdown Loops – 100K Ultramarathon Challenge

On Sunday 29 November, super supporter Lexy is taking on an amazing solo challenge in support of raising vital funds for research into better treatments for children battling neuroblastoma. Lexy will run 100km in Sydney's iconic Centennial Park. Add your support today!
Run2Cure Domain 2021

Run2Cure Domain 2021 will take place on Sunday 30th May 2021. Enjoy a wonderful day of fun runs and family entertainment and support research into a cure for the children's cancer neuroblastoma.

Coronavirus help guide

With fears regarding Coronavirus riding high, we take a look at what we can do to help our neuroblastoma families during this crisis and where to go for the latest information and advice.

Run2Cure Domain 2021

Run2Cure Domain 2021 will take place on Sunday 30th May 2021. Enjoy a wonderful day of fun runs and family entertainment and support research into a cure for the children's cancer neuroblastoma.
Accessibility

Neuroblastoma Australia is committed to providing a website that is accessible to the widest possible audience, regardless of technology or ability. Our website endeavours to conform to level Double-A of the World Wide Web Consortium W3C Web Content Accessibility Guidelines 2.0.
Kahlilla's Story #14km

Little Lilla's light continues to shine. Always and forever.
What is neuroblastoma?

Neuroblastomas are cancers that start in early nerve cells (called neuroblasts) of the sympathetic nervous system. This means that tumours can be found anywhere along this system; most commonly (about 50%) start in the adrenal glands (above the kidney), or near the spine, chest, neck or pelvis.
Detection, diagnosis & staging

Most symptoms of neuroblastoma are caused by the growth of the cancer into nearby tissues or organs, or its spread to distant parts of the body such as bones or bone marrow.
Childhood Cancer Awareness Month

September is Childhood Cancer Awareness Month. Share our hope for a cure for ALL types of neuroblastoma during September. More children under five die from neuroblastoma than from any other childhood cancer.
Summer's Story #34

Summer battled for 15 months and gained her wings 22 December 2018. Very loved and missed by her family especially her three brothers
Two research grants awarded

Today we announced funding grants to two ground breaking research projects which we hope will take us a step close to finding a cure for the rare and deadly children’s cancer neuroblastoma.
Give a gift to a child with cancer

Brighten a child's day by donating one of our three amazing new activity packs! For as little as $59, you can gift a child with neuroblastoma a fun Activity Pack designed to keep them entertained and engaged whilst isolated indoors at home or in hospital.
Adam's Story #39

Adam, a little boy starting out in life who was diagnosed with a cruel and vicious disease, that no treatment could eradicate. We must do better for our children.