Connecting with others

As a charity formed by families affected by neuroblastoma, we understand that as the disease is so rare, often families are at risk of feeling isolated. We are committed to providing opportunities for neuroblastoma families to connect with each other through our events and online platforms.

If you would like us to connect you to another family please email us at [email protected]

Neuroblastoma Families Support Group

If you would like a safe place to connect with other neuroblastoma families, you can join our Closed Neuroblastoma Family group please visit our Facebook Page.

Closed Neuroblastoma Family Group

Sharing stories

Each journey is different and sharing your story may well help the next family in theirs.

We have a new share your story area to make sharing your journey easier. Visit our family stories to get to know some of our other incredible neuroblastoma families.

Neuroblastoma events

We support community events around Australia as well as Sienna’s Gala Dinner in February and Run2Cure Neuroblastoma fun run and family day out in Sydney’s Domain on 6 September 2020.

These are wonderful opportunities for our families to come together and build supportive relationships.

‘All of our family and friends who could be there on the day felt such a buzz and still talk about Sunday as though reminiscing of a party. Through the darkness of Neuroblastoma, you have found a way to celebrate families at Run2Cure. What an inspiring and uplifting atmosphere you and your team created.’ Katharine, Ben’s Mum

Visit our events area for details of event program or more information on how you can organise your own community event.

Latest

Beyond Bank

Neuroblastoma Australia has partnered with Beyond Bank as part of their Community Reward Banking Program which gives back over $650,000 each year to organisations just like ours.
Set up your fundraising page

It's easy to get fundraising and start supporting a future where all children diagnosed with the cancer neuroblastoma get the chance to grow up. Take a look at our fundraising area to get started.
Neuroblastoma Mums #18

Km #18 for Neuroblastoma Mums 🌸💙🌸 For the beautiful, loving, strong, funny, energetic, fragile, authentic, honest, compassionate, powerful, driven and passionate mother’s of the children we are running for 🌸💙🌸
Natalie Smythe's Story #20

Diagnosed when she was only 13 weeks old, Natalie beat the odds and today is cancer free with two beautiful children of her own.

Run2Cure 2020

Run2Cure Neuroblastoma will take over The Domain, Sydney on Sunday, 6 September 2020 with a fabulous family day plus fun runs for every age.
Accessibility

Neuroblastoma Australia is committed to providing a website that is accessible to the widest possible audience, regardless of technology or ability. Our website endeavours to conform to level Double-A of the World Wide Web Consortium W3C Web Content Accessibility Guidelines 2.0.
Kahlilla's Story #14km

Little Lilla's light continues to shine. Always and forever.
Detection, diagnosis & staging

Most symptoms of neuroblastoma are caused by the growth of the cancer into nearby tissues or organs, or its spread to distant parts of the body such as bones or bone marrow.
What is neuroblastoma?

Neuroblastomas are cancers that start in early nerve cells (called neuroblasts) of the sympathetic nervous system. This means that tumours can be found anywhere along this system; most commonly (about 50%) start in the adrenal glands (above the kidney), or near the spine, chest, neck or pelvis.
Childhood Cancer Awareness Month

This September, wear gold and join our #hope campaign to raise awareness of all forms of children's cancer and the toll it takes on the youngest members of our community and their families.
Two research grants awarded to the Children's Cancer Institute

Today we announced funding grants to two ground breaking research projects which we hope will take us a step close to finding a cure for the rare and deadly children’s cancer neuroblastoma.
Give a gift to a child with cancer

Brighten a child's day by donating one of our three amazing new activity packs! If you would like your gift delivered to a specific neuroblastoma family, please type their details in the comments area of your order. We'll take care of the postage and handling AND all of our gift donations are tax deductible.
Free family activities

With so many of our families and friends at home or in hospital, we've put together some of our best picks for free family fun. We hope you enjoy them! If you have anything fun you'd like to add, please email us at [email protected]
Marko's Story #5km

Diagnosed with neuroblastoma at 16 months, Marko is the only known case worldwide where a low risk VIP neuroblastoma mutated into an aggressive tumour.