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  • Connecting with others
  1. Family Support
  2. Connecting with others

Connecting with others

As a charity formed by families affected by neuroblastoma, we understand that as the disease is so rare, often families are at risk of feeling isolated. We are committed to providing opportunities for neuroblastoma families to connect with each other through our events and online platforms. 

If you would like us to connect you to another family please email us at [email protected] 

Neuroblastoma Families Support Group

If you would like a safe place to connect with other neuroblastoma families, you can join our Closed Neuroblastoma Family group please visit our Facebook Page.

  • Closed Neuroblastoma Family Group  

Newly Diagnosed Support Group

We know that having your child diagnosed with neuroblastoma is earth shattering. You may experience shock, anger, disbelief or intense sadness, fear, and a sense of loss. At times it feels very isolating, with friends and family unable to comprehend what you are going through or how to best provide support. 

Our Parent Support Group is a way for you to connect with other parents of newly diagnosed neuroblastoma children. You can talk to them about their experiences and share your own. It is an opportunity to talk about your child, the impact of treatment protocol, share tips and most importantly connect with others who understand your situation. 

To know more about the group and to join click here.

Sharing stories

Each journey is different and sharing your story may well help the next family in theirs.

We have a new share your story area to make sharing your journey easier. Visit our family stories to get to know some of our other incredible neuroblastoma families.

Neuroblastoma events

We support community events around Australia as well as Sienna’s Gala Dinner in February and Run2Cure Neuroblastoma fun run and family day out in Sydney’s Domain every year.

These are wonderful opportunities for our families to come together and build supportive relationships. 

‘All of our family and friends who could be there on the day felt such a buzz and still talk about Sunday as though reminiscing of a party. Through the darkness of Neuroblastoma, you have found a way to celebrate families at Run2Cure. What an inspiring and uplifting atmosphere you and your team created.’ Katharine, Ben’s MumVisit our events area for details of event program or more information on how you can organise your own community event. 

Published: 19th July, 2019

Updated: 9th August, 2022

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  • Contact us

    Neuroblastoma Australia is a Sydney Children's Cancer Charity in Crows Nest and is a registered charity with GDR Status. The best way to contact us is through [email protected]

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#GivingTuesdayNow #run2curelocal 2little 44kmfor44kids A gift for a child with cancer Donate today Golf2Cure research Zach's neuroblastoma story

Latest tweet

  • One of the highlights of running the charity, Neuroblastoma Australia has been establishing an outstanding Scienti… https://t.co/R2OvK0aGdH

    28thDecember, 2022 @NeuroblastomaAu
  • Excited to announce our @NeuroblastomaAU Grant winners: @MK_CCI from @KidsCancerInst and Dr Daniel Carter from… https://t.co/KVmFTNvrd5

    10thDecember, 2022 @NeuroblastomaAu
  • 2023 marks the 10 year anniversary of our charity’s signature fundraising event, Run2Cure. It started as a run for… https://t.co/W1HiLZ8SH7

    15thNovember, 2022 @NeuroblastomaAu

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Registered charity ABN : 74 173 375 414
Neuroblastoma Australia Level 1, 441 Pacific Highway, Crows Nest, NSW 2065,
+61 (0)2 9906 2066, [email protected]