Family Support Connecting with others Connecting with others As a charity formed by families affected by neuroblastoma, we understand that as the disease is so rare, often families are at risk of feeling isolated. We are committed to providing opportunities for neuroblastoma families to connect with each other through our events and online platforms. If you would like us to connect you to another family please email us at [email protected] Neuroblastoma Families Support Group If you would like a safe place to connect with other neuroblastoma families, you can join our Closed Neuroblastoma Family group please visit our Facebook Page. Closed Neuroblastoma Family Group Newly Diagnosed Support Group We know that having your child diagnosed with neuroblastoma is earth shattering. You may experience shock, anger, disbelief or intense sadness, fear, and a sense of loss. At times it feels very isolating, with friends and family unable to comprehend what you are going through or how to best provide support. Our Parent Support Group is a way for you to connect with other parents of newly diagnosed neuroblastoma children. You can talk to them about their experiences and share your own. It is an opportunity to talk about your child, the impact of treatment protocol, share tips and most importantly connect with others who understand your situation. To know more about the group and to join click here. Sharing stories Each journey is different and sharing your story may well help the next family in theirs. We have a new share your story area to make sharing your journey easier. Visit our family stories to get to know some of our other incredible neuroblastoma families. Neuroblastoma events We support community events around Australia as well as Sienna’s Gala Dinner in February and Run2Cure Neuroblastoma fun run and family day out in Sydney’s Domain every year. These are wonderful opportunities for our families to come together and build supportive relationships. ‘All of our family and friends who could be there on the day felt such a buzz and still talk about Sunday as though reminiscing of a party. Through the darkness of Neuroblastoma, you have found a way to celebrate families at Run2Cure. What an inspiring and uplifting atmosphere you and your team created.’ Katharine, Ben’s MumVisit our events area for details of event program or more information on how you can organise your own community event.