Our Impact Neuroblastoma Awareness Week 2024 Neuroblastoma Awareness Week 2024 Neuroblastoma Awareness Day, on February 2, marks the start of a week-long campaign to raise awareness about neuroblastoma, a devastating childhood cancer. It starts on the 2nd of the 2nd Month as 2 is the number reflective of neuroblastoma and all the challenges it presents! Not enough people have even heard of neuroblastoma and yet it is the leading cause of cancer death of children under 5. It is a solid tumour cancer developing from embryonic nerve cells and it is still not known why this disease occurs. The Awareness Week provides us with an opportunity to highlight neuroblastoma and increase our supporters pushing for more research so better, safer, kinder treatments are developed. Mark your calendars and get ready to make some noise for kids who don’t have a voice! 1. Share our social posts - using hashtags #2little #neuroblastomaawarenessweek 2. Share our video called #2little with friends and connections on your socials - this will be posted to our Facebook, Insta and Linkedin pages and on our website 3. Buy some Awareness merchandise from our store - wear a pin so people ask you what it is for or simply buy one of our frangipani products (20% off for Awareness Week) 4. Sign-up for one of our charity 2024 events or create your own event - simply running a facebook birthday fundraiser can help draw attention to this cause Why More Needs to be Done Because childhood cancers are uncommon when compared to adult cancers, childhood cancer research (including neuroblastoma) receives a relatively small amount of funding as research is based on numbers and the potential return on investment. Only approx 10% of Government cancer research funding is given to children’s cancer research. Pharmaceutical companies mainly invest in adult cancers where the population sizes are far bigger. Our CEO, Lucy Jones, says this is not acceptable and just #2little. Lucy lost her own 2 year old daughter in 2010 and has worked with other families, individuals and organisations to raise over $3 million for research into neuroblastoma. Promising trials are evolving but drug development takes many years (approx 12 years from lab to bedside) and it's vital to support the pathway of these drugs and to test and trial other approaches to ensure all children get the chance to grow up and lead a long and healthy life. Currently treatments are far 2 toxic for small developing bodies and lead to immediate short term effects and considerable late effects. Treatments have 2 be kinder and far less damaging How You Can Help During Neuroblastoma Awareness Week we want to get more people listening…and we need your help! 1. Share our socials Post a frangipani photo to your social pages and share our Awareness Day image. To raise the profile of the disease, download and post our Awareness Week tiles, or share them from our social pages. Use the hashtags #2little, #neuroblastoma and #neuroblastomaawareness - ask your friends and family to do the same. Right click on the image to save as a download, or file of your choice. More tiles can be found here: https://www.neuroblastoma.org.au/awareness-week-social-media-tiles 2. Share our #2little Awareness Week Slideshow During this week we'll be acknowledging and remembering those affected by neuroblastoma by sharing a slideshow (snippet above) dedicated to children diagnosed with neuroblastoma. If you are a family affected by neuroblastoma, we would love your help to make this awareness week special by sending us a photo (selfies also very welcome) of a frangipani with words, or an image, that shows who your frangipani is for. Please send your photos to: [email protected] 3. Wear a Frangipani Whether you choose to wear our frangipani t-shirt featuring an exclusive Ken Done frangipani or buy a frangipani tote bag, you can raise awareness about neuroblastoma every day. Our online store has lots of other awareness-raising merchandise, including pins, badges and car stickers. And, during Awareness Week we're giving a 20% discount on all frangipani merchandise! 4. Sign-up for an Event You can make a difference by joining us at one of our events such as Run2Cure. Simply register and get a team together - you can explain to your team members why you are joining up and how their help can make a real difference. If you work for a company, this is in particular a great way for making people aware of a cause they may never heard about. Want to go one step further, dress up in pink and gold and wear some frangipanis! Currently Run2Cure has an earlybird running so you can save 20% off standard prices and go into a prize draw. Once you register, simply sharing your fundraising page can help spread awareness. 5. Spread the Word If you want to do your own fundraiser and help raise awareness, there are plenty of ways or simply hold a Facebook Fundraiser. for your birthday and help spread the word that way Thank-you for supporting kids with neuroblastoma this Neuroblastoma Awareness Week. Manage Cookie Preferences