Skip over main navigation
  • Log in
  • Basket: (0 items)
Neuroblastoma Australia
Newsletter sign up
  • Twitter
  • Facebook
  • YouTube
  • instagram
  • LinkedIn
Charity Shop Donate
  • Twitter
Menu
  • About Neuroblastoma
    • What is neuroblastoma?
      • What is neuroblastoma?
      • Neuroblastoma Fact Sheet
      • Resources
      • Coronavirus help guide
    • Family stories
    • Key research areas
  • About Us
    • Our purpose
    • Our story
    • Our people
      • Our Board
      • Our Scientific Advisory Board
      • Our Neuroblastoma Australia Team
    • Our supporters
    • Our finances
    • News
    • Contact us
  • Family Support
    • Latest Health Advisory
    • Newly diagnosed
      • Key statistics
      • Causes & risks
      • Detection, diagnosis & staging
    • On treatment
      • Treatments & side effects
      • Clinical trials
      • Hospital tips
      • Life outside of hospital
      • Related Support Services
    • Post treatment
      • After treatment
      • Late effects
      • Relapse
    • Connecting with others
      • Family support group
      • Bereavement Support
      • Free family activities
    • Apply for an activity pack
  • Our Impact
    • Why fund research?
    • Our research projects
      • Current projects
      • Past projects
      • Grant recipients
    • Grant applications
  • Fundraise
    • Fundraise for us
    • Fundraising ideas
    • Support our fundraisers
      • All our fundraisers
      • Run2Cure Local
      • #44kmfor44kids
      • 2 Many 2 Young
    • Corporate fundraising
      • Workplace giving
      • Move2Cure
  • Events
    • Our neuroblastoma events
    • Other events
    • Past events
    • Conferences
    • Volunteer
  • Donate
    • Donate today
    • Give monthly
    • Support our appeals
    • In Memory of
    • Leave a gift in your will
  • Admin
    • Log in
  • Basket: (0 items)
  • Life Outside of Hospital
  1. Family Support
  2. On treatment
  3. Life outside of hospital

Life Outside of Hospital

The day to day life for a child with cancer, and their carers can be very difficult. There are many challenges to be faced and it’s normal to feel overwhelmed.

 

Your child may be experiencing distressing emotions about their cancer diagnosis, side effects from treatment and mood changes from the effects of medications. It is very important that carers of children with cancer look after themselves during this time. Knowing what to expect and who to get support from can help the family cope throughout treatment. 

Social workers assigned to you by your hospital should be able to connect you to support services and we have collated a range of options through our Related Support Services page.

The Cancer Council Victoria has also developed a resource area regarding life during and after treatment with information regarding the following:

  • Nutrition and diet
  • Fatigue
  • Blood counts
  • Hair loss
  • Mouth and dental care
  • Physical activity
  • Pain
  • Caring for a child with cancer
  • Play time for the child with cancer
  • Practical issues (finance, child care, travel, insurance)

Cancer at school

Starting day-care, pre-school or primary school is a big step for any child. If your child is also managing cancer treatment it will be important to share information regarding their care with appropriate staff and maintain regular communication regarding how your child is coping both at home and in care. 

The Cancer Council Victoria’s Cancer in the school community pack is designed to be shared with your child’s school and is available to order for free or downloadable as a PDF from the site. The American Cancer Society also has a useful article regarding returning to school. 

The Royal Children’s Hospital Melbourne has produced a What do I tell my friends and  classmates at school?  Which is designed to help children and parents discuss communicating the disease to peers. They have also developed the Chronic illness and school page with guidelines on how to coordinate support from medical carers and schools. 

Read next: After Treatment

More information

Visit our Related support services page for an extensive list of information and resources.

Published: 20th August, 2019

Updated: 10th March, 2022

Author: Karina May

Share this page
  • Email
  • Facebook
  • Twitter

Latest

  • Nita Arora-Parkes

    Nita Arora-Parkes

    Nita is founder and Director of Groupcpo; a platform for small businesses and start-ups to find, buy and sell the tools and services they need to grow and scale their business. Nita has over 20 years’ experience as a technology and procurement executive, managing strategic partnerships and vendor negotiations with a global team.

  • Artist generously supports Neuroblastoma Australia

    Artist generously supports Neuroblastoma Australia

    Artist Craig Waddell has donated another stunning frangipani inspired art work to form the design for a 2nd limited edition tote bag.

  • 2022 Grant Round Announcement

    2022 Grant Round Announcement

    We are excited to announce the winners of our 2022 grants round. Two exceptional scientists will lead studies to develop tailored treatments to improve outcomes for children with neuroblastoma.

  • Nanoparticle therapy study

    Nanoparticle therapy study

    Recipient : Professor Maria Kavallaris
    Institute: Children's Cancer Institute
    Funding: $175,000 from 2023 to 2024

Most read

  • Emeline's Story

    Emeline's Story

    After months of misdiagnoses, including a middle-of-the-night emergency trip to the hospital, Emeline’s mum took her to a paediatric gastroenterologist believing her tummy issue was severe constipation. It turned out to be neuroblastoma.

  • What is neuroblastoma?

  • Run2Cure Local 2022

    Run2Cure Local 2022

    This September, Childhood Cancer Awareness Month join Run2Cure Local 2022. Run, get fit and fundraise at a location near you!

  • Detection, diagnosis & staging

    Detection, diagnosis & staging

    Know about symptoms of neuroblastoma, detection, diagnosis and different stages of neuroblastoma childhood cancer.

  • How common is neuroblastoma?

  • Donate today

    Donate today

    Help us beat the number one toddler cancer. Please donate today to support world class Australian research into developing better, safer treatments with the ultimate goal of finding a definitive cure for all children diagnosed with neuroblastoma.

  • Jazmyn's 2 many 2 young Walk

    Jazmyn's 2 many 2 young Walk

    Support this special 2.2 km walk - inspired by Jazmyn Mitchell. Dress Up and wear a tutu 2 help raise awareness on 20.02.2022 and support all the children affected by neuroblastoma. This is Jazmyn's walk and legacy - a special light in this world.

  • How dangerous is neuroblastoma?

  • Why does this cancer form?

  • Contact us

    Neuroblastoma Australia is a Sydney Children's Cancer Charity in Crows Nest and is a registered charity with GDR Status. The best way to contact us is through [email protected]

Tag cloud

#GivingTuesdayNow #run2curelocal 2little 44kmfor44kids A gift for a child with cancer Donate today Golf2Cure research Zach's neuroblastoma story

Latest tweet

  • #neuroblastomaawarenessweek #neuroblastoma #neuroblastomaaustralia https://t.co/yw83lFmhhM

    3rdFebruary, 2023 @NeuroblastomaAu
  • Today is #neuroblastomaawarenessday. Post a photo of a frangipani to raise awareness about this terrible childhood… https://t.co/JMK5Z4qPzp

    1stFebruary, 2023 @NeuroblastomaAu
  • One of the highlights of running the charity, Neuroblastoma Australia has been establishing an outstanding Scienti… https://t.co/R2OvK0aGdH

    28thDecember, 2022 @NeuroblastomaAu

Some of our generous supporters include:

  


 




Approved by:

 Social Impact 2020 Rating

  • Contact us
  • Media
  • Sitemap
  • Accessibility
  • Terms & Conditions
  • Privacy Policy

Registered charity ABN : 74 173 375 414
Neuroblastoma Australia Level 1, 441 Pacific Highway, Crows Nest, NSW 2065,
+61 (0)2 9906 2066, [email protected]