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Two research grants awarded to the Children's Cancer Institute

Today we announced funding grants to two ground breaking research projects which we hope will take us a step close to finding a cure for the rare and deadly children’s cancer neuroblastoma.
Research projects for 2020

Two projects from the Children's Cancer Institute have won research grants for 2020. High-risk neuroblastoma cases with TERT oncogene rearrangement and Using MYC inhibitors to potentiate CART cell therapy for neuroblastoma.
Indianna's Story

Indianna was diagnosed with high-risk neuroblastoma at just 12 months of age. Even while enduring high strength chemotherapy she found the strength to play peak a- boo with the nurses and charm the doctors with her smile and incredible dimples.
Amber's Story

In July 2015, four and a half year old Amber had woken up from her sleep complaining of a sore stomach – which was very out of ordinary for her.

Dr Steve DuBois

Dr. DuBois is director of experimental therapeutics at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center. He is a pediatric oncologist with an active clinical and translational research program focused on patients with advanced neuroblastoma and Ewing sarcoma. He conducts phase 1 and 2 clinical trials of novel targeted agents. His clinical practice focuses on providing outstanding team-based care for children and young adults with solid cancers.
Associate Professor Juliet Gray

Dr. Juliet Gray is an Associate Professor in Paediatric Oncology at the Cancer Immunology Centre, University of Southampton. She leads a translational research group focused on novel antibody immunotherapies for neuroblastoma, including preclinical evaluation of novel combinational therapies as well as early phase clinical trials.
Sarah White

Sarah is a paediatric Occupational Therapist and is passionate about working with children and families. Sarah brings 20 years experience working in private, not for profit and government health roles specifically in childhood disability and mental health. Since her daughter Isabella was diagnosed with Stage 3 Neuroblastoma in 2011, Sarah has been actively involved in creating awareness and fundraising for Neuroblastoma research.
Isabella Mannix

Isabella has a background in Marketing and Sales, with twenty years’ experience working in a variety of senior roles within the Financial Services sector and more recently the Health sector. After her daughter Georgia was diagnosed with Stage 1 Neuroblastoma in 2012, Isabella and her family have supported various childrens’ cancer charities – including the Childrens’ Cancer Institute, the Kids Cancer Project, Redkite and Neuroblastoma Australia.
Sarah Jones

Passionate about working with children, Sarah is a mum of three with a teaching qualification, who is currently pursuing postgraduate studies in Special Education. Sarah has experience in the not-for-profit sector, having worked for many years at The Starlight Children’s Foundation helping to develop in-hospital entertainment programs for seriously ill children. Sarah has been involved with fundraising for research into Neuroblastoma for over 5 years.
Our Scientific Advisory Board
Dr Louise Causer

Louise is a medical epidemiologist and lecturer currently based at The Kirby Institute, UNSW Australia and has worked internationally both in clinical and research settings across a number of fields. Having trained and working in a highly academic setting for the past decade, Louise has direct experience and key insight into the research setting in Australia and internationally.
Jane Price

Jane Price holds a Bachelor of Arts and a Bachelor of Laws. She is a small business owner, running her own immigration consultancy business, which she has grown in a few short years into a thriving practice with a couple of employees. Jane is lucky enough to have a “pigeon-pair” of children (aged 11 & 14) and was also privileged to know Sienna Hoffman.
Rochelle Yates

Rochelle is a mother of two, and Chairman of a global logistics company where she specialises in marketing. Rochelle's career includes vast experience in events and promotions and she has brought this skill to help coordinate numerous fundraising events and activities for Neuroblastoma Australia.
Professor Andy Pearson

Prof Andy Pearson is formerly a Cancer Research UK Professor of Paediatric Oncology, at the Institute of Cancer Research and the Royal Marsden Hospital NHS Trust. During a long and distinguished career, he helped establish and led many key groups in the paediatric oncology landscape both nationally and internationally.

Run2Cure 2020

Presale tickets are now open for the #funrun4everyone which will take over The Domain, Sydney on Sunday, 31 May 2020!
Accessibility
Christmas Appeal 2019 - for vital research

If you would like to help all children diagnosed with neuroblastoma get the chance to grow up, please do share and support research into a cure for this terrible disease.
What is neuroblastoma?

Neuroblastomas are cancers that start in early nerve cells (called neuroblasts) of the sympathetic nervous system. This means that tumours can be found anywhere along this system; most commonly (about 50%) start in the adrenal glands (above the kidney), or near the spine, chest, neck or pelvis.
Detection, diagnosis & staging

Most symptoms of neuroblastoma are caused by the growth of the cancer into nearby tissues or organs, or its spread to distant parts of the body such as bones or bone marrow.
Childhood Cancer Awareness Month

This September, wear gold and join our #hope campaign to raise awareness of all forms of children's cancer and the toll it takes on the youngest members of our community and their families.
Two research grants awarded to the Children's Cancer Institute

Today we announced funding grants to two ground breaking research projects which we hope will take us a step close to finding a cure for the rare and deadly children’s cancer neuroblastoma.
Zach's Story

Paolo and Diana Carniel had never heard of neuroblastoma before August 2018 when their son Zach, just five years old at the time, was first diagnosed.
Community Events

Community events are an important part of the work we do at Neuroblastoma Australia. Our special thanks go to those throughout our community, who spend many hours raising vital funds that go towards research into better treatments for children affected by neuroblastoma.
How is it diagnosed?

Neuroblastoma may be difficult to diagnose as symptoms often do not become apparent until the tumour has reached a certain size. Even then symptoms may be subtle and similar to other more common non-serious childhood diseases. As a result it often takes some time before the final diagnosis of neuroblastoma is made.