When baby Fio came home from a family holiday with a cough and a little tiredness, her parents never imagined it would mark the beginning of a life-changing journey. Within days of their return, their bubbly little girl was diagnosed with stage 4 neuroblastoma. Fio’s mum, Em, shares their story. Read more
When 19-month-old Emily went to the GP for what seemed like a simple cold, her parents never imagined it would change their lives. Emily's mum, Jade, shares their story. Read more
Little Grace was just 8 months old when her mum, Brooke, noticed a concerning change—Grace’s leg strength and movement seemed to be decreasing. After a hospital visit and an MRI, Brooke and her husband received devastating news: a cancer-like mass had been found in Grace’s chest. Read more
Although Raphael was a bright and active baby, persistent breathing issues worried his mum, Kristen. Despite investigation, nothing untoward could be found. Raphael was nearly two years old when another serious breathing episode occurred which led to a shock diagnosis of stage 2 neuroblastoma. Kristen shares their story. Read more
Read the stories of some of the brave children and their families affected by neuroblastoma. Thank you so much to our families for sharing their experiences and helping others going through this very difficult time. If you would like to share your story please click the button below or email us on [email protected]
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Little Elsie was only six-months-old when her parents, Phil and Jayde, rushed her to hospital, concerned that what seemed like a viral infection might be something more serious. Tests revealed the devastating truth: Elsie had a cancerous tumour in her abdomen. Elsie’s dad, Phil, shares their story. Read more
At 16 years old, Caitlyn’s life changed in ways no teenager, and no family, could ever imagine. What began as a simple pain in her side quickly unfolded into a devastating diagnosis of neuroblastoma. Caitlyn’s mum, Tanya, shares their story. Read more
The arrival of Bec’s much longed for daughter, Nevaeh, was tinged with sadness. Her birth coincided with the heartbreaking loss of Bec’s father, David, who passed away on the very same day. Bec had little time to process the whirlwind of emotions, as just weeks later, Nevaeh was diagnosed with neuroblastoma. Bec shares their story. Read more
Doctors initially thought 11-year-old Hamish’s leg pain was normal teenage growing pains. However, after the pain became debilitating, Hamish’s parents took him to hospital where they received the devastating news that Hamish had stage 4 neuroblastoma. Read more
On Father’s Day in 2021, a young family’s world was turned upside down. At just 10 months old their son, Frances, was diagnosed with stage 4 neuroblastoma with the MYCN amplification—an aggressive, high-risk form of cancer. Read more
On Thursday, September 20, 2024, the lives of little Chloe and her family changed dramatically. It was the first day they ever heard the word “neuroblastoma”. Within 24 hours they went from being on a family holiday to being admitted to the oncology ward in Queensland Children’s Hospital. Read more
In July 2023, Luna’s parents heard six little words no parent ever wants to hear, “I’m sorry, your child has cancer.” It was discovered that Luna had high-risk stage IV neuroblastoma, a rare, aggressive, and fast spreading childhood cancer. Read more
Thirty years have passed since Susan and Peter Le Rossignol lost their beautiful daughter, Kara to neuroblastoma. Here they share their story and although over three decades have passed, many will recognise elements of this story and it highlights the need to do more. Read more
Tyler and Alix, parents to one-year old Harris (or Hazzy), were living fulfilling lives in Hobart. When they took their baby, who had been unsettled for a few weeks, to the hospital, they never imagined their world was about to be turned upside down. Read more