Resources

More in-depth information regarding the childhood cancer neuroblastoma can be found through the following sites.

There are family specific services listed in our Related Support Resources area.

Help others

If you know of a good resource that would benefit our neuroblastoma community, please contact us on [email protected] so we can add it to the list below.

Information

PDQ® Pediatric Treatment Editorial Board. PDQ Neuroblastoma Treatment. Bethesda, MD: National Cancer Institute (NCI) USA.
Australian Government Children’s Cancer Website
Children’s Cancer Institute (Australia)
American Cancer Society (USA)
Neuroblastoma Society (UK)
Cure Search (USA)
The Advances in Neuroblastoma Research Association
The Neuroblastoma Consortium (Global)
Cancer Advisor (an Australian website that connects to up-to-date, evidence-based information about childhood cancer)
A Summary of Childhood Cancer Statistics in Australia (from 1983 to 2014) produced by QLD Cancer Council
The Cancer Council Australia. Call the Cancer Council Helpline from anywhere in Australia for the cost of a local call on 13 11 20.
Children’s Cancer and Leukemia Group (CCLG UK) - large range of downloadable and free publications .
International Society for Pediatric Oncology

Dictionary

NCI Dictionary of Cancer Terms

Latest

Two research grants awarded to the Children's Cancer Institute

Today we announced funding grants to two ground breaking research projects which we hope will take us a step close to finding a cure for the rare and deadly children’s cancer neuroblastoma.
Research projects for 2020

Two projects from the Children's Cancer Institute have won research grants for 2020. High-risk neuroblastoma cases with TERT oncogene rearrangement and Using MYC inhibitors to potentiate CART cell therapy for neuroblastoma.
Indianna's Story

Indianna was diagnosed with high-risk neuroblastoma at just 12 months of age. Even while enduring high strength chemotherapy she found the strength to play peak a- boo with the nurses and charm the doctors with her smile and incredible dimples.
Amber's Story

In July 2015, four and a half year old Amber had woken up from her sleep complaining of a sore stomach – which was very out of ordinary for her.

Run2Cure 2020

Presale tickets are now open for the #funrun4everyone which will take over The Domain, Sydney on Sunday, 31 May 2020!
Accessibility
Christmas Appeal 2019 - for vital research

If you would like to help all children diagnosed with neuroblastoma get the chance to grow up, please do share and support research into a cure for this terrible disease.
What is neuroblastoma?

Neuroblastomas are cancers that start in early nerve cells (called neuroblasts) of the sympathetic nervous system. This means that tumours can be found anywhere along this system; most commonly (about 50%) start in the adrenal glands (above the kidney), or near the spine, chest, neck or pelvis.
Detection, diagnosis & staging

Most symptoms of neuroblastoma are caused by the growth of the cancer into nearby tissues or organs, or its spread to distant parts of the body such as bones or bone marrow.
Childhood Cancer Awareness Month

This September, wear gold and join our #hope campaign to raise awareness of all forms of children's cancer and the toll it takes on the youngest members of our community and their families.
Two research grants awarded to the Children's Cancer Institute

Today we announced funding grants to two ground breaking research projects which we hope will take us a step close to finding a cure for the rare and deadly children’s cancer neuroblastoma.
Zach's Story

Paolo and Diana Carniel had never heard of neuroblastoma before August 2018 when their son Zach, just five years old at the time, was first diagnosed.
Community Events

Community events are an important part of the work we do at Neuroblastoma Australia. Our special thanks go to those throughout our community, who spend many hours raising vital funds that go towards research into better treatments for children affected by neuroblastoma.
How is it diagnosed?

Neuroblastoma may be difficult to diagnose as symptoms often do not become apparent until the tumour has reached a certain size. Even then symptoms may be subtle and similar to other more common non-serious childhood diseases. As a result it often takes some time before the final diagnosis of neuroblastoma is made.