Parent Perspective Published in Research Journal

Understanding the impact and outcomes of current neuroblastoma treatments on children and their families helps researchers define project objectives and desired improvements.

Jen, a parent in our neuroblastoma community, recently made a successful submission to the Pediatric Research Journal to outline her concerns and questions about current treatment options, and underline key considerations for future research.

Jen’s child, Li, was diagnosed with stage 4 neuroblastoma at just 8 months.

Jen was told to expect a “...healthy and well child in 6 months”. Despite undergoing many gruelling treatments, including high-dose chemotherapy, Li is still not in remission after over a year.

Jen’s important contribution will be accessed by paediatric research scientists to help shape the direction of future projects.

You can read the full paper here: https://www.nature.com/articles/s41390-022-02281-8