About Neuroblastoma Family stories Evie's Story In 2013, Joshua and Sarah Weir's two-year-old daughter, Evie, was diagnosed with stage 4 neuroblastoma. Sarah shares Evie's story and how this amazing little girl inspired Evie's Army. Evie's Army Evie's Army' started in 2014 with our family creating a team to participate in our first Neuroblastoma Run2Cure. We thought we may get a few people sponsoring us, but were blown away by the amount of support shown to us. In the end, Evie's army was 70 adults and 24 children on the day, and hundreds of people sponsored our team. We raised a total of $20,339. Since that first year, Evie's Army has participated in Run2Cure each year, and we are so grateful to the people who continue to join us and support us. Who help us in making a stand against Neuroblastoma, trying to make a difference, and honouring Evie. Evie is our reason why we will forever help to raise awareness and funds. This is Evie's story. Evie's Story In August 2013, Evie's dad (Joshua) and I were concerned about our daughter Evie as she had been vomiting and feeling unwell. Only a week after Evie’s second birthday she underwent tests and scans that led to the devastating diagnosis – she had stage 4 neuroblastoma. The primary tumour was discovered in her adrenal gland, as well as other tumours throughout her body. The disease had also spread to her bone marrow. Sarah, Evie's mum Evie responded well to the first course of treatment, which included five rounds of chemotherapy, but later that year she had major abdominal surgery to remove the tumour. Early the next year, following more rounds of chemotherapy, Evie then had a bone marrow transplant from her own stem cells. After a long recovery, she underwent another 12 rounds of radiation and six months of immunotherapy. Three months later, just when life was starting to get back to normal, another tumour was discovered – this time in her head. She had an operation to remove the tumour with more chemotherapy to follow, but only eight months later another tumour was detected. Evie had her second neurosurgery to remove the new tumour, followed by 16 rounds of head and spine radiation. From there, Evie needed scans every three months to make sure she was clear of the disease. You never know what tomorrow holds, so we just enjoy today. Sarah, Evie's mum In 2017 Evie relapsed further, and despite a new drug, Evie very sadly became a little angel on 19th December 2017. Manage Cookie Preferences