About Neuroblastoma Family stories Family stories Evie's Story In August 2013, Joshua and Sarah Weir were concerned about their daughter Evie as she had been vomiting and feeling unwell. Only a week after Evie’s second birthday she underwent tests and scans that led to the devastating diagnosis – she had Stage 4 neuroblastoma. The primary tumour was discovered in her adrenal gland, as well as other tumours throughout her body. The disease had also spread to her bone marrow. Evie responded well to the first course of treatment, which included five rounds of chemotherapy, but later that year she had major abdominal surgery to remove the tumour. Early the next year, following more rounds of chemotherapy, Evie then had a bone marrow transplant from her own stem cells. After a long recovery, she underwent another 12 rounds of radiation and six months of immunotherapy. Three months later, just when life was starting to get back to normal, another tumour was discovered – this time in her head. She had an operation to remove the tumour with more chemotherapy to follow, but only eight months later another tumour was detected. Evie had her second neurosurgery to remove the new tumour, followed by 16 rounds of head and spine radiation and then her three monthly scans have all been clear. You never know what tomorrow holds, so we just enjoy today. Sarah, Evie's mum Evie relapsed further in 2017 and despite a new drug, Evie very sadly became a little angel on 19th December 2017. Evie was a Run2Cure Neuroblastoma Superhero in 2017 and will be honoured in the sixth kilometre of the #44kmfor44kids in May 2020. Her memory shines bright and we thank her family for their support. Find out how you can fundraise in memory of children like Evie and help bring us one step closer to a cure.